Ethan, Alison Chandra's son, has heterotaxy syndrome, a rare genetic disorder.
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Mother of Boy with Rare Genetic Disorder Tweets Hospital Bill
As lawmakers push to get a health care bill through the Senate, one New Jersey mom is speaking out. Alison Chandra's son, Ethan, was born with heterotaxy syndrome, a rare genetic disorder in which organs form on the wrong side of the body.
